The Griffin Adventures: yard sale

Wednesday, March 30, 2011

House hunt is over! MOVING SALE!

Dear friends and family, We bought a house last week and hope to move soon. We are so EXCITED! We purchased the house fully furnished and could move right in; how cool is that? We have some friends and family that need furniture and so we will sell/give some at both places. Our first yard sale is this Friday at 6:00 am at our home on Wyeth Drive. We are having furniture, clothes, toys, knick knacks and so much more. Please tell all your friends in Guntersville and the surrounding areas. We will have a full size sleigh bed and a queen size Broyhill bed. I think the king size sleigh bed is SOLD, but if not you should be there first to buy it. I have a small craft/dinner table and four chairs, some odd tables, some outside tools, and other things too many to mention. Please post this on your status to help us let everyone know about the yard sale. Wendy

Tuesday, April 28, 2009

Special Olympics

Dear friends,
Brody attempted Special Olympics last Friday and got a bronze and a gold. We are very proud of him. It was very hard and he cried most of the day. Any change in his routine is devastating. Saturday we had a yard sale at his school to raise money and did well.......$1600.00. WOW! Considering that most things were a quarter, we did GOOD.
We are very very tired at our house.

The Top Ten Things You Should Know About Fragile X Syndrome

By Mary Beth Langan and Sally Nantais

1. It’s genetic.
2. If a woman is a carrier, she has a 50/50 chance of passing it on to her son(s) or daughter(s). 1 in 100 to 200 women are carriers **.
3. If a man is a carrier he will pass it only to his daughter(s), and they will only be carriers. 1 in 800 men are carriers.
4. Fragile X Syndrome does not discriminate; it doesn’t care which ethnic group you belong to.
5. Fragile X Syndrome is a spectrum disorder. Symptoms may vary from mild learning disabilities (including shyness and social anxiety) to severe cognitive impairment (mental retardation).
6. Premature Ovarian Failure, more commonly known as early menopause, is a condition that affects 20-28% of the female FXS carrier population.
7. Fragile X-associated Tremor/Ataxia Syndrome (FXTAS), discovered in 2001, is a neurological disorder that can involve tremors, balance irregularities, difficulty walking and dementia which sadly is often misdiagnosed as Parkinson's and/or Alzheimer’s. This condition is present in some older FXS carriers (typically after the age of fifty), usually in males but FXTAS can also affect female carriers.
8. There are minor physical traits noted in many persons with Fragile X Syndrome, but not in all. These are traits which may also be present within the typical population, nothing unique which would necessarily indicate FXS testing is necessary for your child.
9. When testing for Fragile X Syndrome (FXS), it is critical that the correct tests are ordered – the Fragile X DNA (Southern Blot) and PCR analysis. Inaccurate results occur far too often with the generic chromosomal panel. Test for FXS to obtain a diagnosis or to rule it out. If you don’t have what may be the correct diagnosis of FXS, then you will never be aware of improved treatments or the cure when it’s found.
10. Where to go for the most accurate and up-to-date information on fragile X syndrome:http://www.fragilex.org/, the National Fragile X Foundationhttp://www.fraxa.org/, Fraxa Research Foundationhttp://www.conquerfragilex.org/, Conquer Fragile X Foundation** American Academy of Family Physicians, News and Publications, Vol. 72/No. 1 (July 1, 2005) http://www.aafp.org/afp/20050701/111.html
Mary Beth Langan and Sally Nantais are both Fragile X Syndrome carriers; each has a son with Fragile X Syndrome. They can be contacted at mblangan@hotmail.com and sally_nada@juno.com