The Griffin Adventures: Millo is limping!

Wednesday, September 29, 2010

Millo is limping!

Dear friends and family,

Millo is limping a little on his left leg and we need you to pray. We have checked his foot and leg and don't see anything but we know that with prayer he can be healed.

Please check out our new "Who's Brody?" buttons at Goats, Music and More coming up the second weekend in October in Lewisburg, TN. Brody has had several good days at Guntersville Elementary School this past week and we ask that you keep him lifted in prayer too.

We will see you in Boaz this weekend on Friday and Saturday with the new Lucky Buck Jewelry originals for the fall. We can't wait to show you the new pieces.

Ian had NO cards pulled today and was so happy about it and the fact that he earned two toys back! Atlee is going to a birthday party this weekend and she is THRILLED! Life has certainly been an adventure here in Alabama. Thank you Lord for the fun times.

Wendy

1 comment:

Unknown said...: You are truly blessed with the true treasures of this earth.
You & Bubba are true believer's in FAITH. I admire your decisions.; October 4, 2010 at 7:19 PM

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The Top Ten Things You Should Know About Fragile X Syndrome

By Mary Beth Langan and Sally Nantais

1. It’s genetic.
2. If a woman is a carrier, she has a 50/50 chance of passing it on to her son(s) or daughter(s). 1 in 100 to 200 women are carriers **.
3. If a man is a carrier he will pass it only to his daughter(s), and they will only be carriers. 1 in 800 men are carriers.
4. Fragile X Syndrome does not discriminate; it doesn’t care which ethnic group you belong to.
5. Fragile X Syndrome is a spectrum disorder. Symptoms may vary from mild learning disabilities (including shyness and social anxiety) to severe cognitive impairment (mental retardation).
6. Premature Ovarian Failure, more commonly known as early menopause, is a condition that affects 20-28% of the female FXS carrier population.
7. Fragile X-associated Tremor/Ataxia Syndrome (FXTAS), discovered in 2001, is a neurological disorder that can involve tremors, balance irregularities, difficulty walking and dementia which sadly is often misdiagnosed as Parkinson's and/or Alzheimer’s. This condition is present in some older FXS carriers (typically after the age of fifty), usually in males but FXTAS can also affect female carriers.
8. There are minor physical traits noted in many persons with Fragile X Syndrome, but not in all. These are traits which may also be present within the typical population, nothing unique which would necessarily indicate FXS testing is necessary for your child.
9. When testing for Fragile X Syndrome (FXS), it is critical that the correct tests are ordered – the Fragile X DNA (Southern Blot) and PCR analysis. Inaccurate results occur far too often with the generic chromosomal panel. Test for FXS to obtain a diagnosis or to rule it out. If you don’t have what may be the correct diagnosis of FXS, then you will never be aware of improved treatments or the cure when it’s found.
10. Where to go for the most accurate and up-to-date information on fragile X syndrome:http://www.fragilex.org/, the National Fragile X Foundationhttp://www.fraxa.org/, Fraxa Research Foundationhttp://www.conquerfragilex.org/, Conquer Fragile X Foundation** American Academy of Family Physicians, News and Publications, Vol. 72/No. 1 (July 1, 2005) http://www.aafp.org/afp/20050701/111.html
Mary Beth Langan and Sally Nantais are both Fragile X Syndrome carriers; each has a son with Fragile X Syndrome. They can be contacted at mblangan@hotmail.com and sally_nada@juno.com